Without a Crystal Ball

Our Journey through Chronic Illness

It was a year ago that our lives were turned upside down. We had just found out about our son’s serious heart condition. The Cardiologist was so concerned about his heart that he believed surgery was within weeks. We waited with bated breath to find out what the surgeons wanted to do about his bad …

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It’s the world of ever present change. Nothing ever seems to stay the same in any aspect of life anymore. We live in a fast paced world with social media dictating our thoughts and emotions. Most of us want more and more, and can’t stop ourselves from comparing ourselves to whatever is going on around …

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        Something happened in the community I feel a very close connection to this past week. An article was published, and it upset a lot of folks. There was hurt feelings, angry words and a lot of lashing out. People brought up very valid points, and words like inspiration porn, ableist, and …

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    We often hear things during our journey in parenting and we shake our heads. Words from people that are well meaning and well intentioned and they make us scratch our heads and wonder how they could even think these things. I think of people in their heads forming these words. I imagine a …

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  I know you don’t understand why we’re working so hard to keep our child safe. I know you shake your head and snicker when we ask you if anyone has a cough, cold or stomachache. Trust me, I know you think I’m being overprotective, and I’ve even heard you call me a “helicopter” parent. …

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