We wrote this a while back – and I think it needs another view! Please read and enjoy!
It’s the world of ever present change. Nothing ever seems to stay the same in any aspect of life anymore. We live in a fast paced world with social media dictating our thoughts and emotions. Most of us want more and more, and can’t stop ourselves from comparing ourselves to whatever is going on around us. Oddly, this part of life has been easier for me to manage than the constant change I deal with at home managing my son’s multitude of diagnosis and disease. Nothing ever seems to stay the same with his needs, and I am sure this is not uncommon in parenting, but this is different. This is medical equipment that changes, medications that change, therapy that changes, health conditions that deteriorate, and my inability to properly manage that change.
This isn’t like normal parenting. Most parents don’t have to worry about their children missing a dose…
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