Without a Crystal Ball

Our Journey through Chronic Illness

What Breaks Your Heart?

January 3, 2016

It’s the new year, and during the new year we often think about how we can be better people. We assess everything that has been or not been accomplished over the past year, and we determine what changes need to be made. Some of us go in to our closets, and we grab that sexy black dress hanging just behind our maternity clothes that hasn’t been worn in 5 years. We take a hold of that slinky black dress, and we make the bold decision to see if it still fits. As we stuff our oversized thighs in to it and realize slowly as we can’t seem to lift it above our baby belly, that this year we are going to be the size we were in high school. For others, we look at our friends and we see the goals they have accomplished, the jobs they have secured, the beautifully decorated suburban homes they own, and the impeccable and sleek luxury car they drive. We tell ourselves this is going to be the year for wealth and success. It seems like the largest driving forces for many of us are how good we look and how much money we have. Then today I attended church, and I was asked a simple question by our pastor.

“What breaks your heart?”.

It’s a simple question, and one that most of us would have to only think of very a moment. Many of us think of impoverished children, homeless youth, terminally ill children, elderly left alone in nursing homes, animals abandoned or beaten, or a child losing their parent to an illness or tragedy. There are MANY things that can break our hearts. In this moment I thought of one thing and one thing only that breaks my heart more than anything else. It is what motivates me to share, and it is what is going to propel me in to starting a new venture this coming year. My heart breaks every time I hear of another family entering the world of parenting a child with special needs. Primarily my heart breaks the most when I hear the family has been given a diagnosis that is either terminal or life threatening for their child. It’s not something any parent should ever have to deal with because we are not suppose to bury our children. I imagine how alone I felt 3 years ago when Von sat on life support. There were no resources available to help me navigate all the nuances of what it meant to have a child with a life threatening disease.

Over the past 6 months, my blog has grown and our following has increased. This blog has been able to help others, and I have been able to network with other bloggers around the country that also face similar situations.  We came up with an idea that could help us expand our voice and make a change in the lives of others. We will be launching a Blog for Parents of Children with Special Needs and Medically Fragile Diagnosis. This will be authored by several people and represent many diagnosis. There will be voices that will go to the heart of the very things that are hardest for many parents to deal with on the journey. We will provide insight, resources, and hope to provide guidance and support to those struggling. We will ask you to share and help others that you know struggling to find us. All of us have been very alone in our journey, and our goal is to help others not feel alone. No one should be left to fend for themselves after being given a life changing diagnosis. The blog will be launching shortly, and as it grows I will ask your support in helping me grow it. The more people I can reach, the more lives I can change.

My life as a Christian is not just to love Christ, but to also bless those around me and help those around me. We are all created equal, and we all have an equal right to a life that is happy and fulfilling. If I can ease the suffering of one person for even just one moment, I will know I have made a difference in my life. In the words of the pastor this morning “If you really want to become a better person, do something that makes the world a better place.”  I intend to make 2016 the year of starting my journey in helping change the world around me.  If you are with me, want to know how you can contribute, have questions, leave a comment below.

Cheers to big Changes in 2016!

 

 

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3 thoughts on “What Breaks Your Heart?

  1. Gail Miller says:

    sounds like a wonderful venture for you and your friends that should be helpful to many.

    Like

  2. Jean kirschenheiter says:

    What breaks my heart is not being able to see my three grandsons.my daughter and I had a very bad fight. She has not allowed me to see or talk to them. They have been a big part of my life since they were born.

    Like

  3. dee says:

    I have a special needs adult child , what breaks my heart is I don’t know what he will do in life. He still lives with me.

    Like

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