Without a Crystal Ball

Our Journey through Chronic Illness

Chubby cheeks

January 18, 2014

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He wasn’t always this filled out. In fact before Von started thyroid medication and growth hormone he was no where near the CDC growth chart. We had to do weekly weigh ins, and his pediatrician remained totally perplexed about why he wasn’t gaining weight.

Von was diagnosed last January. He’s grown 10 inches and gained more than 11 lbs since we started his hormone treatment. He is in both the 10% for weight and height.

Anytime you meet a child with a growth disorder, one tip I can suggest, don’t tell the mother that your child was so many pounds at x months to compare them. This is one of the hardest things for a parent to hear. We feel responsible for the the fact that our child isn’t growing. We feel sad our child isn’t “normal” in size. Something as innocent as comparing can make us cry. Always congratulate the parent and the child for growth. For many of these kids, each ounce is a fight and challenge to gain. Growth of any kind, no matter how minimal, is something to celebrate.

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