Adrenal Insufficiency, Blogging, chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

The Emotions You Feel When Your Child has a Grim Prognosis

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More The Emotions You Feel When Your Child has a Grim Prognosis

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ADHD, anti-vaccination, Anxiety, Apraxia, Autism, Blogging, Mental Health, Mom, Parenting, Parenting Advice

Why I Don’t Want to Cure My Son’s Autism

I have a topic that is weighing heavy on my heart. It is something I think about a lot because it profoundly affects my life daily as a parent of a child that has autism. My son is a loving, sweet, stubborn, smart, and unique boy that has a brain and body that sometimes don’t… Read More Why I Don’t Want to Cure My Son’s Autism

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, personality, Special needs parenting

The One Choice Every Special Needs Parent Needs to Make

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More The One Choice Every Special Needs Parent Needs to Make

ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places.  The exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

Anxiety, Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Special needs parenting, weight loss

How Grieving Caused Me to Lose Myself in Food and Alcohol; And How I Bounced Back

Before my pregnancy, I was in the best shape of my life. I was working with a personal trainer three times a week, and we had worked together to develop a clean and healthy diet. My husband and I were both at healthy weights for our height, and we both had an incredible amount of… Read More How Grieving Caused Me to Lose Myself in Food and Alcohol; And How I Bounced Back

Autism, Blogging, crafts, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

4 Easy Ways to Keep Your Sensory Seeker Happy

My son is a tornado. He moves from one activity to the next, and I’m sure dumping out toys could be added to his resume as a “strength.” The kid doesn’t stop moving from the time he wakes up until the time he goes to bed. Over the past few years, I have had to… Read More 4 Easy Ways to Keep Your Sensory Seeker Happy

Adrenal Insufficiency, Anxiety, Autism, Medically Fragile, Mom life, Parenting, Parenting Advice, Rare Disease

To The Doctor that said "Your Child will Never be Einstein"

Dear Doctor, I am not sure if you remember me. I met you in the Pediatric Intensive Care Unit while my child was on life support. You weren’t my child’s primary care taker that week, you were just the doctor that happened to be on the floor the night we learned our diagnosis.  I remember… Read More To The Doctor that said "Your Child will Never be Einstein"