Autism, feeding disorder, Grief, Guest Blogger, Parenting, Special needs parenting

How I Learned to Embrace My Role as a Special Needs Mom

By: Stephanie Reitenour Five years ago, I was a kindergarten teacher in Colorado enjoying mountain life with my husband, Nick. We were incredibly involved in our church, our community, and the schools. My life was busy and full, and I loved life. I had a job that I liked, and I felt confident that I… Read More How I Learned to Embrace My Role as a Special Needs Mom

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Disability Advocacy, Parenting, Parenting Advice, Special needs parenting

Children with Special Needs Don’t Need Pity

I want to get something off my chest, and it’s been eating away at my heart for the past five years. As a parent of a child with multiple disabilities and medical issues, I have heard a lot of comments made to me that are from well-intentioned friends, family, and strangers. For the most part,… Read More Children with Special Needs Don’t Need Pity

Grief, Mom, Parenting, Special needs parenting

The Heartbreak and Loneliness When You are a Special Needs Mom

Earlier this month I wrote about the difficulty that special needs moms have with fitting into the Mom world. I have also shared with you some of the difficult truths about raising a child with special needs that we don’t always share with friends. What I have noticed in the responses, feedback, and comments shared… Read More The Heartbreak and Loneliness When You are a Special Needs Mom

Mom, Mom life, Parenting, Parenting Advice, Special needs parenting

5 Steps to Take After Your Child is Diagnosed with a Special Need

I will never forget the day my son was diagnosed with a life-threatening disease. It was an overwhelming sense of complete lack of control. I knew nothing about the disease, how to care for him, what it meant for his future, what it meant for our future, or how I could help him grow and… Read More 5 Steps to Take After Your Child is Diagnosed with a Special Need

Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Child with Special Needs is Gawked at by Strangers

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Child with Special Needs is Gawked at by Strangers

Apraxia, Blogging, Chronic Illness, Faith, Grief, Mom life, Parenting, Parenting Advice, Speech Therapy

Guest Blog: Denying Myself, Serving My Daughter

One of my favorite things to do is to read other blogs by mothers in the Special Needs Community. I connected with this mother while we were both contributing at the Mighty. She is a mother to Jaycee, a sweet young girl with Down Syndrome. Her blog covers speech therapy tips, Down Syndrome, Parenting, and… Read More Guest Blog: Denying Myself, Serving My Daughter

Adrenal Insufficiency, Blogging, Chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

When You Are Raising a Child that May Not Live to be an Adult

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More When You Are Raising a Child that May Not Live to be an Adult

ADHD, anti-vaccination, Anxiety, Apraxia, Autism, Blogging, Mental Health, Mom, Parenting, Parenting Advice

Why I Don’t Want to Cure My Son’s Autism

I have a topic that is weighing heavy on my heart. It is something I think about a lot because it profoundly affects my life daily as a parent of a child that has autism. My son is a loving, sweet, stubborn, smart, and unique boy that has a brain and body that sometimes don’t… Read More Why I Don’t Want to Cure My Son’s Autism

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent

ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places. ┬áThe exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends