Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, personality, Special needs parenting

The One Choice Every Special Needs Parent Needs to Make

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More The One Choice Every Special Needs Parent Needs to Make

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ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places.  The exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

Medically Fragile, Mental Health, Mom, Mom life, Parenting, Rare Disease, Sensory Processing Disorder, Special needs parenting

Mothers of Children with Special Needs aren’t Always Strong

Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong

Adrenal Insufficiency, Genetic Testing, Harvard Medical School, Medically Fragile, Mom, Mom life, NIH, Rare Disease

A Desperate Plea to Help a Family Find Answers for a Medical Mystery

Three years ago I had the pleasure to meet a mom that was in my local community. Her daughter was just a few years older than my son, and our children shared a lot of very similar diagnosis. Our friendship over the years has blossomed despite the fact that we haven’t seen each other since… Read More A Desperate Plea to Help a Family Find Answers for a Medical Mystery