ADHD, Crime, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

Why My Medically Fragile Son’s Future Terrifies Me

A funny thing happened today as I was being interviewed for this blog. I was sitting down Pediatric Home Services to discuss my advocacy and mission in sharing content on this page. It was a candid conversation about how the blog was born, my journey as a special needs mom, and my thoughts for the… Read More Why My Medically Fragile Son’s Future Terrifies Me

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Autism, Back to School, Medically Fragile, Parenting, Public School, Rare Disease, Sensory Processing Disorder

When There is No Place for Your Child with Special Needs in the Public Schools

Back to school is an exciting time for kids as they pick out school supplies, and get to shop for new clothes. Parents are excited to get their children back into a more structured environment, and the endless merry go round of trying to keep their child from boredom over the summer. Pictures start to… Read More When There is No Place for Your Child with Special Needs in the Public Schools

Medically Fragile, Mental Health, Mom, Mom life, Parenting, Rare Disease, Sensory Processing Disorder, Special needs parenting

Mothers of Children with Special Needs aren’t Always Strong

Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong

Adrenal Insufficiency, Disability Advocacy, g-tube, Grief, Medically Fragile, Parenting Advice, Special needs parenting

Why I’m a Helicopter Parent

Five years ago I had found out I was pregnant, and I was scared but so excited for the future. I remember gazing at the first ultrasound picture of my baby. We called the baby “nugget” because in the photos it looked just like a peanut. Now 5 years later, I have a 4.5-year-old son,… Read More Why I’m a Helicopter Parent

ADHD, Adrenal Insufficiency, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs

When I was a child, my goals were to be in the FBI, a lawyer, a famous writer, or a top executive of an organization. Never one time in my life did I tell anyone that I just wanted to be a mom or a wife. It just was not a part of my dreams… Read More The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs

Adrenal Insufficiency, Anxiety, Blogging, Breastfeeding, Chronic Illness, Ehlers Danlo's Syndrome, feeding disorder, g-tube, Genetic Testing, Medically Fragile, Mom, Mom life, Parenting, Parenting Advice, Sensory Processing Disorder

The Sisterhood of Mother’s of Medically Fragile Children

We are a sisterhood that we never imagined being a part of and never wanted to be in this group. We are a sisterhood united in caring for our children and helping them meet their highest potential. Most of us are stuck at home, unable to hang out due to the demands of our children’s… Read More The Sisterhood of Mother’s of Medically Fragile Children

Breastfeeding, Special needs parenting

Why I'm Extending Breastfeeding of my Medically Fragile Son

A funny thing has been happening recently, and it’s cute and sweet and sad at the same time. My baby boy is becoming simply a boy. He’s getting taller, lankier (if that’s possible), and he’s becoming a lot more independent. It’s hard at times for me to watch the change because he’s the only child… Read More Why I'm Extending Breastfeeding of my Medically Fragile Son

Medically Fragile, Special needs parenting

To Loved Ones Who Think I'm Overprotecting My Medically Fragile Child

  I know you don’t understand why we’re working so hard to keep our child safe. I know you shake your head and snicker when we ask you if anyone has a cough, cold or stomachache. Trust me, I know you think I’m being overprotective, and I’ve even heard you call me a “helicopter” parent.… Read More To Loved Ones Who Think I'm Overprotecting My Medically Fragile Child