ADHD, Crime, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

Why My Medically Fragile Son’s Future Terrifies Me

A funny thing happened today as I was being interviewed for this blog. I was sitting down Pediatric Home Services to discuss my advocacy and mission in sharing content on this page. It was a candid conversation about how the blog was born, my journey as a special needs mom, and my thoughts for the… Read More Why My Medically Fragile Son’s Future Terrifies Me

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Mom, Mom life, Parenting, Parenting Advice, Special needs parenting

5 Steps to Take After Your Child is Diagnosed with a Special Need

I will never forget the day my son was diagnosed with a life-threatening disease. It was an overwhelming sense of complete lack of control. I knew nothing about the disease, how to care for him, what it meant for his future, what it meant for our future, or how I could help him grow and… Read More 5 Steps to Take After Your Child is Diagnosed with a Special Need

ADHD, Adrenal Insufficiency, Anxiety, Blogging, Disability Advocacy, g-tube, Genetic Testing, Grief, Mom, Mom life, Parenting, Parenting Advice, Rare Disease, Special needs parenting

3 Ways to Make Friends as a Mom with a Special Needs Child

By: Michael Monheit, Esq For many mothers of a special needs child, tending their own personal friendships hovers somewhere at the bottom of the “to do” list, falling underneath occupational therapy for their child, doctors visits, and the simple tasks of everyday living. At the same time, as a sometimes tired and overwhelmed mother, your… Read More 3 Ways to Make Friends as a Mom with a Special Needs Child

anti-vaccination, Autism, Blogging, feeding disorder, Genetic Testing, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

Our Truth about Vaccines and Autism

When my son was diagnosed with Autism Spectrum Disorder in May 2017, I knew that there would be an onset of questions from friends and family about what could have caused his Autism. In truth, it has never really mattered to me what caused the Autism. We have been a part of the special needs… Read More Our Truth about Vaccines and Autism

ADHD, anti-vaccination, Apraxia, Autism, Blogging, Grief, Mental Health, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

Please Don’t Share Articles with Me About Autism

When my son was diagnosed with Autism this past spring, I was open and honest with all of our friends and family about the diagnosis. We have been very open with everyone about the life we lead, and you can read this blog filled with content about our journey in raising him. It felt like… Read More Please Don’t Share Articles with Me About Autism

Adrenal Insufficiency, Blogging, Chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

When You Are Raising a Child that May Not Live to be an Adult

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More When You Are Raising a Child that May Not Live to be an Adult

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent

Anxiety, Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Special needs parenting, Weight Loss

How Grieving Causes You to Make Poor Choices

Before my pregnancy, I was in the best shape of my life. I was working with a personal trainer three times a week, and we had worked together to develop a clean and healthy diet. My husband and I were both at healthy weights for our height, and we both had an incredible amount of… Read More How Grieving Causes You to Make Poor Choices

Medically Fragile, Mental Health, Mom, Mom life, Parenting, Rare Disease, Sensory Processing Disorder, Special needs parenting

Mothers of Children with Special Needs aren’t Always Strong

Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong