Adrenal Insufficiency, Blogging, chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

The Emotions You Feel When Your Child has a Grim Prognosis

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More The Emotions You Feel When Your Child has a Grim Prognosis

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Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, personality, Special needs parenting

The One Choice Every Special Needs Parent Needs to Make

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More The One Choice Every Special Needs Parent Needs to Make

Anxiety, Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Special needs parenting, weight loss

How Grieving Caused Me to Lose Myself in Food and Alcohol; And How I Bounced Back

Before my pregnancy, I was in the best shape of my life. I was working with a personal trainer three times a week, and we had worked together to develop a clean and healthy diet. My husband and I were both at healthy weights for our height, and we both had an incredible amount of… Read More How Grieving Caused Me to Lose Myself in Food and Alcohol; And How I Bounced Back

Adrenal Insufficiency, Apraxia, Autism, Back to School, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Public School, Rare Disease, Sensory Processing Disorder, Special needs parenting

When There is No Place for Your Child with Special Needs in the Public Schools

Back to school is an exciting time for kids as they pick out school supplies, and get to shop for new clothes. Parents are excited to get their children back into a more structured environment, and the endless merry go round of trying to keep their child from boredom over the summer. Pictures start to… Read More When There is No Place for Your Child with Special Needs in the Public Schools

Medically Fragile, Mental Health, Mom, Mom life, Parenting, Rare Disease, Sensory Processing Disorder, Special needs parenting

Mothers of Children with Special Needs aren’t Always Strong

Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong

Autism, Blogging, crafts, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

4 Easy Ways to Keep Your Sensory Seeker Happy

My son is a tornado. He moves from one activity to the next, and I’m sure dumping out toys could be added to his resume as a “strength.” The kid doesn’t stop moving from the time he wakes up until the time he goes to bed. Over the past few years, I have had to… Read More 4 Easy Ways to Keep Your Sensory Seeker Happy

Autism, Mom, Mom life, Parenting, Parenting Advice, PBS Kids, Ryan's ToyReview, Special needs parenting, Streaming Options for Kids, Technology, YouTube

Why We No Longer Allow YouTube in Our House: 10 Apps that are Better Options

We had an epic parenting fail last night. Over the past few years, we have been allowing our son to watch seemingly harmless videos on YouTube. A few years ago, he didn’t seem to watch anything more than people opening eggs, or a woman demonstrating how to play with toys. Initially, we were ok with… Read More Why We No Longer Allow YouTube in Our House: 10 Apps that are Better Options

Apraxia, Autism, Blogging, Mom, Mom life, Parenting, Special needs parenting

I'm an "Autism" Mom: 5 Things You Need to Know about My Journey

I’m about to talk about something that is going to probably upset people, and for that, I want to apologize ahead of time. This isn’t meant to cause ANY harm to anyone. However, there are a few things I want to clear up as I have been thrown into the world of becoming a parent… Read More I'm an "Autism" Mom: 5 Things You Need to Know about My Journey

Adrenal Insufficiency, Apraxia, Autism, Blogging, Breastfeeding, Ehlers Danlo's Syndrome, Grief, Medically Fragile, Mental Health, Mom, Mom life, Parenting, Post Traumatic Stress Disorder, Sensory Processing Disorder, social, Special needs parenting

A Letter to All my Online Friends Fighting To Save their Medically Fragile Children

Hi Friends, The past few years, I have had the pleasure or maybe displeasure (I mean who wants a child that is chronically ill), to meet so many of you on Facebook support groups. We have cried together, laughed together, and we have been to the darkest places together. No one else knows better the path… Read More A Letter to All my Online Friends Fighting To Save their Medically Fragile Children

Adrenal Insufficiency, Anxiety, Blogging, Grief, Medically Fragile, Mental Health, Mom, Mom life, Parenting, Post Traumatic Stress Disorder, Special needs parenting, Survivor

The Fear, Anxiety, and Panic of Parenting a Medically Complex Child

Chug-a-chug-a-chug-a-chug-a-chug-a-chug. I can hear the click of the wheels on the steel tracks, and the horn is starting to get louder and louder. The wind is picking up in my hair, and I can feel the speed I hold on for dear life to the seat on my side. Suddenly, there is a large crash,… Read More The Fear, Anxiety, and Panic of Parenting a Medically Complex Child