Medically Fragile, Mom, Parenting Advice, Special needs parenting

5 Ways to Help Your Child’s Fear of the Doctor

Recently I got an email from a reader about how to help her child manage her anxiety of going to the hospital, doctor, or dentist. Her daughter is only 21 months old, but has spent 34 weeks of her life in the hospital. Within that time she has been exposed to numerous procedures without sedation… Read More 5 Ways to Help Your Child’s Fear of the Doctor

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Medically Fragile, Mom, Parenting Advice, Special needs parenting

When You are Trapped By Grief, Hope for the Mom of a Medically Fragile Child

Raising a child that is medically fragile can be an emotional rollercoaster. You will have days that are amazing and filled with big wins for your child. There will be other days where things will fall apart, your child‘s health will deteriorate, or you will be hit in the heart with a devastating diagnosis. How… Read More When You are Trapped By Grief, Hope for the Mom of a Medically Fragile Child

Adrenal Insufficiency, Chronic Illness, Educational Info, Faith, Heart Disease, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

For Many Children Birthdays are Another Year of Beating Death

Most parents get excited for their child to celebrate another year, a day of their birth, and a successful completion of another trip around the sun. Parties are planned, invitations designed, decorations picked out to match a theme, cakes ordered or baked, and food prepared to celebrate the special day. Images of the day will… Read More For Many Children Birthdays are Another Year of Beating Death

ADHD, Crime, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

Why My Medically Fragile Son’s Future Terrifies Me

A funny thing happened today as I was being interviewed for this blog. I was sitting down Pediatric Home Services to discuss my advocacy and mission in sharing content on this page. It was a candid conversation about how the blog was born, my journey as a special needs mom, and my thoughts for the… Read More Why My Medically Fragile Son’s Future Terrifies Me

Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Child with Special Needs is Gawked at by Strangers

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Child with Special Needs is Gawked at by Strangers

anti-vaccination, Autism, Blogging, feeding disorder, Genetic Testing, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

Our Truth about Vaccines and Autism

When my son was diagnosed with Autism Spectrum Disorder in May 2017, I knew that there would be an onset of questions from friends and family about what could have caused his Autism. In truth, it has never really mattered to me what caused the Autism. We have been a part of the special needs… Read More Our Truth about Vaccines and Autism

Blenderized Diet, Chronic Illness, feeding disorder, g-tube, Health, Medically Fragile, Mom, Parenting Advice, Real Food Blends, Tube Fed, Whole Food

How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

As a mother, one of the most maternal things we can do for our children is to feed them. There are a population of parents, like me, that have never been able to experience the joy of feeding their child by mouth. My experience of feeding my son was always plagued with difficulty, frustration, and… Read More How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

Adrenal Insufficiency, Blogging, Chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

When You Are Raising a Child that May Not Live to be an Adult

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More When You Are Raising a Child that May Not Live to be an Adult

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent