Chronic Illness, Disability Advocacy, Ehlers Danlo's Syndrome, Guest Blogger, Parenting, Rare Disease, Special needs parenting

The Day I Found out Most of My Family Was Chronically Ill

March 31, 2016, is the day my life changed. March 31, 2016, is the day that Davy’s geneticist listened to me as I explained the research I’d done that led me to believe that both he and I had EDS and the day that she informally diagnosed us both.  I cried tears of joy in… Read More The Day I Found out Most of My Family Was Chronically Ill

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ADHD, Adrenal Insufficiency, Anxiety, Blogging, Disability Advocacy, g-tube, Genetic Testing, Grief, Mom, Mom life, Parenting, Parenting Advice, Rare Disease, Special needs parenting

3 Ways to Make Friends as a Mom with a Special Needs Child

By: Michael Monheit, Esq For many mothers of a special needs child, tending their own personal friendships hovers somewhere at the bottom of the “to do” list, falling underneath occupational therapy for their child, doctors visits, and the simple tasks of everyday living. At the same time, as a sometimes tired and overwhelmed mother, your… Read More 3 Ways to Make Friends as a Mom with a Special Needs Child

Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Child with Special Needs is Gawked at by Strangers

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Child with Special Needs is Gawked at by Strangers

Adrenal Insufficiency, Disability Advocacy, g-tube, Grief, Medically Fragile, Parenting Advice, Special needs parenting

Why I’m a Helicopter Parent

Five years ago I had found out I was pregnant, and I was scared but so excited for the future. I remember gazing at the first ultrasound picture of my baby. We called the baby “nugget” because in the photos it looked just like a peanut. Now 5 years later, I have a 4.5-year-old son,… Read More Why I’m a Helicopter Parent