Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong
Three years ago I had the pleasure to meet a mom that was in my local community. Her daughter was just a few years older than my son, and our children shared a lot of very similar diagnosis. Our friendship over the years has blossomed despite the fact that we haven’t seen each other since… Read More A Desperate Plea to Help a Family Find Answers for a Medical Mystery
We had an epic parenting fail last night. Over the past few years, we have been allowing our son to watch seemingly harmless videos on YouTube. A few years ago, he didn’t seem to watch anything more than people opening eggs, or a woman demonstrating how to play with toys. Initially, we were ok with… Read More Why We No Longer Allow YouTube in Our House: 10 Apps that are Better Options
I’m about to talk about something that is going to probably upset people, and for that, I want to apologize ahead of time. This isn’t meant to cause ANY harm to anyone. However, there are a few things I want to clear up as I have been thrown into the world of becoming a parent… Read More I'm an "Autism" Mom: 5 Things You Need to Know about My Journey
Hi Friends, The past few years, I have had the pleasure or maybe displeasure (I mean who wants a child that is chronically ill), to meet so many of you on Facebook support groups. We have cried together, laughed together, and we have been to the darkest places together. No one else knows better the path… Read More A Letter to All my Online Friends Fighting To Save their Medically Fragile Children
Chug-a-chug-a-chug-a-chug-a-chug-a-chug. I can hear the click of the wheels on the steel tracks, and the horn is starting to get louder and louder. The wind is picking up in my hair, and I can feel the speed I hold on for dear life to the seat on my side. Suddenly, there is a large crash,… Read More The Fear, Anxiety, and Panic of Parenting a Medically Complex Child
First, nothing you ate or didn’t eat or drank or didn’t drink (unless it was copious amounts of drugs or alcohol) likely did any harm to your child. Stop blaming yourself or feeling guilty that you could have possibly done anything to harm them. … Read More A Letter to all the Mom's that have felt Shamed
Dear Doctor, I am not sure if you remember me. I met you in the Pediatric Intensive Care Unit while my child was on life support. You weren’t my child’s primary care taker that week, you were just the doctor that happened to be on the floor the night we learned our diagnosis. I remember… Read More To The Doctor that said "Your Child will Never be Einstein"