Chronic Illness, Gastroparesis, Grief, Mental Health, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

When Grief Makes You Feel Like You Are Drowning

Just keep swimming. Just keep swimming. Just Keep swimming Those words run through my head every day as I care for my medically complex child. Over the past five years, I have learned to tread water, swim laps, and sometimes I stop swimming. There are some periods when I can’t physically move, and I feel… Read More When Grief Makes You Feel Like You Are Drowning

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Managing my Mental Health, Mental Health, Mom, Parenting, Parenting Advice, Special needs parenting

Feeling Burnt Out? 7 Simple Ways to Manage Caregiver Fatigue For Special Needs Moms

The past few months we have written about the guilt, the heartbreak, the anxiety of thinking and planning the future of a complex child, and the social isolation that comes with parenting a child with special needs. The underlying theme in all of these articles has been the high levels of stress and anxiety that… Read More Feeling Burnt Out? 7 Simple Ways to Manage Caregiver Fatigue For Special Needs Moms

ADHD, anti-vaccination, Apraxia, Autism, Blogging, Grief, Mental Health, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

Why I Don’t Care What Causes Autism

When my son was diagnosed with Autism this past spring, I was open and honest with all of our friends and family about the diagnosis. We have been very open with everyone about the life we lead, and you can read this blog filled with content about our journey in raising him. It felt like… Read More Why I Don’t Care What Causes Autism

ADHD, anti-vaccination, Anxiety, Apraxia, Autism, Blogging, Mental Health, Mom, Parenting, Parenting Advice

Why I Don’t Want to Cure My Son’s Autism

I have a topic that is weighing heavy on my heart. It is something I think about a lot because it profoundly affects my life daily as a parent of a child that has autism. My son is a loving, sweet, stubborn, smart, and unique boy that has a brain and body that sometimes don’t… Read More Why I Don’t Want to Cure My Son’s Autism

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent

ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places. ¬†The exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

Anxiety, Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Special needs parenting, Weight Loss

How Grieving Causes You to Make Poor Choices

Before my pregnancy, I was in the best shape of my life. I was working with a personal trainer three times a week, and we had worked together to develop a clean and healthy diet. My husband and I were both at healthy weights for our height, and we both had an incredible amount of… Read More How Grieving Causes You to Make Poor Choices

Medically Fragile, Mental Health, Mom, Mom life, Parenting, Rare Disease, Sensory Processing Disorder, Special needs parenting

Mothers of Children with Special Needs aren’t Always Strong

Mothers of children with special needs are praised for their strength, perseverance, and determination in raising their children. While it’s great being reminded that you are a good parent, there is something inherently uncomfortable when you are told you are strong for raising your child that has special needs. When people share these sentiments, I… Read More Mothers of Children with Special Needs aren’t Always Strong

Adrenal Insufficiency, Apraxia, Autism, Blogging, Breastfeeding, Ehlers Danlo's Syndrome, Grief, Medically Fragile, Mental Health, Mom, Mom life, Parenting, Post Traumatic Stress Disorder, Sensory Processing Disorder, Social, Special needs parenting

A Letter to All my Online Friends Fighting To Save their Medically Fragile Children

Hi Friends, The past few years, I have had the pleasure or maybe displeasure (I mean who wants a child that is chronically ill), to meet so many of you on Facebook¬†support groups. We have cried together, laughed together, and we have been to the darkest places together. No one else knows better the path… Read More A Letter to All my Online Friends Fighting To Save their Medically Fragile Children

Adrenal Insufficiency, Anxiety, Blogging, Grief, Medically Fragile, Mental Health, Mom, Mom life, Parenting, Post Traumatic Stress Disorder, Special needs parenting, Survivor

The Fear, Anxiety, and Panic of Parenting a Medically Complex Child

Chug-a-chug-a-chug-a-chug-a-chug-a-chug. I can hear the click of the wheels on the steel tracks, and the horn is starting to get louder and louder. The wind is picking up in my hair, and I can feel the speed I hold on for dear life to the seat on my side. Suddenly, there is a large crash,… Read More The Fear, Anxiety, and Panic of Parenting a Medically Complex Child