Managing my Mental Health, Parenting, Rare Disease, Special needs parenting

There is No Normal When you Are Raising a Zebra

The room was a bright white. The kind of white that is stark, bare and void of any personality. Above us was a square that worked as a track for a large camera that moved around the room. In front of us was a bed that was as white as the room, with white tissue… Read More There is No Normal When you Are Raising a Zebra

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Chronic Illness, Gastroparesis, Grief, Mental Health, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

When Grief Makes You Feel Like You Are Drowning

Just keep swimming. Just keep swimming. Just Keep swimming Those words run through my head every day as I care for my medically complex child. Over the past five years, I have learned to tread water, swim laps, and sometimes I stop swimming. There are some periods when I can’t physically move, and I feel… Read More When Grief Makes You Feel Like You Are Drowning

ADHD, Managing my Mental Health, Mom, Mom life, Parenting, Special needs parenting

The Struggle of Raising a Special Needs Child When You Have ADHD

“I can’t find my keys!” “Crap, did I give him his medicine?” “Why did I come downstairs again?” “Did I call the doctor? When is his appointment again?” “I really need to start writing all of this down!” “Did I brush his teeth? When was the last time his diaper was changed?” “Why can’t I… Read More The Struggle of Raising a Special Needs Child When You Have ADHD

Managing my Mental Health, Mental Health, Mom, Parenting, Parenting Advice, Special needs parenting

Feeling Burnt Out? 7 Simple Ways to Manage Caregiver Fatigue For Special Needs Moms

The past few months we have written about the guilt, the heartbreak, the anxiety of thinking and planning the future of a complex child, and the social isolation that comes with parenting a child with special needs. The underlying theme in all of these articles has been the high levels of stress and anxiety that… Read More Feeling Burnt Out? 7 Simple Ways to Manage Caregiver Fatigue For Special Needs Moms

ADHD, Crime, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

Why My Medically Fragile Son’s Future Terrifies Me

A funny thing happened today as I was being interviewed for this blog. I was sitting down Pediatric Home Services to discuss my advocacy and mission in sharing content on this page. It was a candid conversation about how the blog was born, my journey as a special needs mom, and my thoughts for the… Read More Why My Medically Fragile Son’s Future Terrifies Me

ADHD, Adrenal Insufficiency, Anxiety, Blogging, Disability Advocacy, g-tube, Genetic Testing, Grief, Mom, Mom life, Parenting, Parenting Advice, Rare Disease, Special needs parenting

3 Ways to Make Friends as a Mom with a Special Needs Child

By: Michael Monheit, Esq For many mothers of a special needs child, tending their own personal friendships hovers somewhere at the bottom of the “to do” list, falling underneath occupational therapy for their child, doctors visits, and the simple tasks of everyday living. At the same time, as a sometimes tired and overwhelmed mother, your… Read More 3 Ways to Make Friends as a Mom with a Special Needs Child

ADHD, anti-vaccination, Apraxia, Autism, Blogging, Grief, Mental Health, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

Why I Don’t Care What Causes Autism

When my son was diagnosed with Autism this past spring, I was open and honest with all of our friends and family about the diagnosis. We have been very open with everyone about the life we lead, and you can read this blog filled with content about our journey in raising him. It felt like… Read More Why I Don’t Care What Causes Autism

ADHD, anti-vaccination, Anxiety, Apraxia, Autism, Blogging, Mental Health, Mom, Parenting, Parenting Advice

Why I Don’t Want to Cure My Son’s Autism

I have a topic that is weighing heavy on my heart. It is something I think about a lot because it profoundly affects my life daily as a parent of a child that has autism. My son is a loving, sweet, stubborn, smart, and unique boy that has a brain and body that sometimes don’t… Read More Why I Don’t Want to Cure My Son’s Autism

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent

ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places. ┬áThe exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends