ADHD, Adrenal Insufficiency, Anxiety, Blogging, Disability Advocacy, g-tube, Genetic Testing, Grief, Mom, Mom life, Parenting, Parenting Advice, Rare Disease, Special needs parenting

3 Ways to Make Friends as a Mom with a Special Needs Child

By: Michael Monheit, Esq For many mothers of a special needs child, tending their own personal friendships hovers somewhere at the bottom of the “to do” list, falling underneath occupational therapy for their child, doctors visits, and the simple tasks of everyday living. At the same time, as a sometimes tired and overwhelmed mother, your… Read More 3 Ways to Make Friends as a Mom with a Special Needs Child

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Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Medically Complex Child is Stared At and You Feel like a Side Show

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Medically Complex Child is Stared At and You Feel like a Side Show

Blenderized Diet, Chronic Illness, feeding disorder, g-tube, Health, Medically Fragile, Mom, Parenting Advice, Real Food Blends, Tube Fed, Whole Food

How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

As a mother, one of the most maternal things we can do for our children is to feed them. There are a population of parents, like me, that have never been able to experience the joy of feeding their child by mouth. My experience of feeding my son was always plagued with difficulty, frustration, and… Read More How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

Adrenal Insufficiency, Disability Advocacy, g-tube, Grief, Medically Fragile, Parenting Advice, Special needs parenting

Why I’m a Helicopter Parent

Five years ago I had found out I was pregnant, and I was scared but so excited for the future. I remember gazing at the first ultrasound picture of my baby. We called the baby “nugget” because in the photos it looked just like a peanut. Now 5 years later, I have a 4.5-year-old son,… Read More Why I’m a Helicopter Parent

feeding disorder, g-tube, Special needs parenting

4 Things I Don’t Want to Hear about My Child’s Feeding Disorder

We embarked on our life with a feeding tube in 2016, but we had been dealing with my son’s feeding disorder since birth. There is really not much more isolating than having a child that cannot eat given that we live in a world that revolves around food. Every party, every holiday, every day 3-5… Read More 4 Things I Don’t Want to Hear about My Child’s Feeding Disorder

Adrenal Insufficiency, Anxiety, Blogging, Breastfeeding, Chronic Illness, Ehlers Danlo's Syndrome, feeding disorder, g-tube, Genetic Testing, Medically Fragile, Mom, Mom life, Parenting, Parenting Advice, Sensory Processing Disorder

The Sisterhood of Mother’s of Medically Fragile Children

We are a sisterhood that we never imagined being a part of and never wanted to be in this group. We are a sisterhood united in caring for our children and helping them meet their highest potential. Most of us are stuck at home, unable to hang out due to the demands of our children’s… Read More The Sisterhood of Mother’s of Medically Fragile Children