Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Medically Complex Child is Stared At and You Feel like a Side Show

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Medically Complex Child is Stared At and You Feel like a Side Show

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anti-vaccination, Autism, Blogging, feeding disorder, Genetic Testing, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

Our Truth about Vaccines and Autism

When my son was diagnosed with Autism Spectrum Disorder in May 2017, I knew that there would be an onset of questions from friends and family about what could have caused his Autism. In truth, it has never really mattered to me what caused the Autism. We have been a part of the special needs… Read More Our Truth about Vaccines and Autism

Blenderized Diet, Chronic Illness, feeding disorder, g-tube, Health, Medically Fragile, Mom, Parenting Advice, Real Food Blends, Tube Fed, Whole Food

How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

As a mother, one of the most maternal things we can do for our children is to feed them. There are a population of parents, like me, that have never been able to experience the joy of feeding their child by mouth. My experience of feeding my son was always plagued with difficulty, frustration, and… Read More How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

feeding disorder, g-tube, Special needs parenting

4 Things I Don’t Want to Hear about My Child’s Feeding Disorder

We embarked on our life with a feeding tube in 2016, but we had been dealing with my son’s feeding disorder since birth. There is really not much more isolating than having a child that cannot eat given that we live in a world that revolves around food. Every party, every holiday, every day 3-5… Read More 4 Things I Don’t Want to Hear about My Child’s Feeding Disorder

Adrenal Insufficiency, Anxiety, Blogging, Breastfeeding, Chronic Illness, Ehlers Danlo's Syndrome, feeding disorder, g-tube, Genetic Testing, Medically Fragile, Mom, Mom life, Parenting, Parenting Advice, Sensory Processing Disorder

The Sisterhood of Mother’s of Medically Fragile Children

We are a sisterhood that we never imagined being a part of and never wanted to be in this group. We are a sisterhood united in caring for our children and helping them meet their highest potential. Most of us are stuck at home, unable to hang out due to the demands of our children’s… Read More The Sisterhood of Mother’s of Medically Fragile Children