When I was a child, my goals were to be in the FBI, a lawyer, a famous writer, or a top executive of an organization. Never one time in my life did I tell anyone that I just wanted to be a mom or a wife. It just was not a part of my dreams… Read More The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs
We live in a gray area of unknown prognosis. It’s a troubling place to live for my husband and me. When you don’t know what is going to happen to your child’s health, it’s hard to make plans for the future. It is hard to know what is going to happen at any… Read More When Your Child's Prognosis is Unknown
We are a sisterhood that we never imagined being a part of and never wanted to be in this group. We are a sisterhood united in caring for our children and helping them meet their highest potential. Most of us are stuck at home, unable to hang out due to the demands of our children’s… Read More The Sisterhood of Mother’s of Medically Fragile Children
Dear Doctor, I am not sure if you remember me. I met you in the Pediatric Intensive Care Unit while my child was on life support. You weren’t my child’s primary care taker that week, you were just the doctor that happened to be on the floor the night we learned our diagnosis. I remember… Read More To The Doctor that said "Your Child will Never be Einstein"
The rollercoaster. I heard it a lot when we first got the diagnosis. I was told that life would never be the same. Doctors told us we would be “busy”. We were told there would be highs and lows. We were told this would be like a rollercoaster. I remember the first day… Read More The Never Ending Ride
We often hear things during our journey in parenting and we shake our heads. Words from people that are well meaning and well intentioned and they make us scratch our heads and wonder how they could even think these things. I think of people in their heads forming these words. I imagine a… Read More Will he grow out of it?