Hi! I’m Katie! This is a story of my life as a parent to a very special boy named Von. Von is a joy to everyone he knows. He lights up my life with smiles and giggles. Von also has several medical conditions that we document throughout this journey: Adrenal Insufficiency, Hypothyroidism, Growth Hormone Deficiency, Testosterone Deficiency, Arnold Chiari Malformation 1, Megaventricles (Brain), ASD and VSD (Muscular Heart murmurs), Moderate Persistent Asthma, Separated Stomach muscles, Hyperflexibility, Mixed Tone throughout his body, and Flexible Flat Feet. In addition to his medical conditions Mr. Von also is developmentally delayed in nearly every area and suffers from Apraxia of Speech, Sensory Processing Disorder, and Dyspraxia. We have a myriad of doctors, therapists and full time Home Care Nursing. I blog out about our journey in managing his care, my life as a parent to an exceptional child and all the stress and love that goes in to it. This is at times raw and other times will inspire. More than anything this is our life. One that has been turned upside down by a Chronic Life Threatening Illness that has us living without a Crystal Ball. We are also located on Facebook at https://www.facebook.com/Vonssuperheropage/


3 thoughts on “About

  1. Hey Kate, I read your other blog and made a comment there. My daughter has Secondary AI as well. We have recently got her a service dog. He is a standard poodle and is there for multpile reasons. For one he is being trained to smell the change in blood sugar which is a direct symptom of benign low on cortisol, he is also big…so he is thee to stabilize her if she is feeling weak and unstable. He also provides a sense of security…which helps with stress. She has only had him a few months, and his medical training will be starting very soon. He has already alerted her a few times and then about 30 min later she felt like a truck hit her…so medical training for him is going to be a breeze. I know she would be happy to share how her service dog has helped her and what a dog could do for your son.

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