ADHD, Crime, Medically Fragile, Parenting, Raising my Chronically Ill Son, Rare Disease, Special needs parenting

Why My Medically Fragile Son’s Future Terrifies Me

A funny thing happened today as I was being interviewed for this blog. I was sitting down Pediatric Home Services to discuss my advocacy and mission in sharing content on this page. It was a candid conversation about how the blog was born, my journey as a special needs mom, and my thoughts for the… Read More Why My Medically Fragile Son’s Future Terrifies Me

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Mom, Mom life, Parenting, Parenting Advice, Special needs parenting

5 Steps to Take After Your Child is Diagnosed with a Special Need

I will never forget the day my son was diagnosed with a life-threatening disease. It was an overwhelming sense of complete lack of control. I knew nothing about the disease, how to care for him, what it meant for his future, what it meant for our future, or how I could help him grow and… Read More 5 Steps to Take After Your Child is Diagnosed with a Special Need

ADHD, Adrenal Insufficiency, Anxiety, Blogging, Disability Advocacy, g-tube, Genetic Testing, Grief, Mom, Mom life, Parenting, Parenting Advice, Rare Disease, Special needs parenting

3 Ways to Make Friends as a Mom with a Special Needs Child

By: Michael Monheit, Esq For many mothers of a special needs child, tending their own personal friendships hovers somewhere at the bottom of the “to do” list, falling underneath occupational therapy for their child, doctors visits, and the simple tasks of everyday living. At the same time, as a sometimes tired and overwhelmed mother, your… Read More 3 Ways to Make Friends as a Mom with a Special Needs Child

Adrenal Insufficiency, Autism, Disability Advocacy, feeding disorder, g-tube, Health, Medically Fragile, Parenting Advice, Rare Disease

When Your Medically Complex Child is Stared At and You Feel like a Side Show

When you are a mother, you are never on time for any event. There are so many things any parent needs to remember for their child. Do they have extra clothes, snacks, sippy cups, toys, or their favorite stuffed animal? Now imagine you have a child that has special needs and has more than just… Read More When Your Medically Complex Child is Stared At and You Feel like a Side Show