Hurricane Evacuation, Hurricane Harvey

Guest Blogger: Our Evacuation Story of Hurricane Harvey with Our Medically Fragile Son

By: Lindsey Hiatt When we brought my son home from the hospital after 3 1/2 months in the NICU, along with the whole trach/ventilator/feeding tube/oxygen he required, we got things all set up at home the first night with the medical equipment companies and private duty nursing companies. Among the huge stack of paperwork required,… Read More Guest Blogger: Our Evacuation Story of Hurricane Harvey with Our Medically Fragile Son

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anti-vaccination, Autism, Blogging, feeding disorder, Genetic Testing, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

Our Truth about Vaccines and Autism

When my son was diagnosed with Autism Spectrum Disorder in May 2017, I knew that there would be an onset of questions from friends and family about what could have caused his Autism. In truth, it has never really mattered to me what caused the Autism. We have been a part of the special needs… Read More Our Truth about Vaccines and Autism

Blenderized Diet, Chronic Illness, feeding disorder, g-tube, Health, Medically Fragile, Mom, Parenting Advice, Real Food Blends, Tube Fed, Whole Food

How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

As a mother, one of the most maternal things we can do for our children is to feed them. There are a population of parents, like me, that have never been able to experience the joy of feeding their child by mouth. My experience of feeding my son was always plagued with difficulty, frustration, and… Read More How Real Food Blends and A Blenderized Diet Improved our Son’s Quality of Life

Apraxia, Blogging, Chronic Illness, Faith, Grief, Mom life, Parenting, Parenting Advice, Speech Therapy

Guest Blog: Denying Myself, Serving My Daughter

One of my favorite things to do is to read other blogs by mothers in the Special Needs Community. I connected with this mother while we were both contributing at the Mighty. She is a mother to Jaycee, a sweet young girl with Down Syndrome. Her blog covers speech therapy tips, Down Syndrome, Parenting, and… Read More Guest Blog: Denying Myself, Serving My Daughter

ADHD, anti-vaccination, Apraxia, Autism, Blogging, Grief, Mental Health, Mom, Parenting, Parenting Advice, Sensory Processing Disorder, Special needs parenting

Why I Don’t Care What Causes Autism

When my son was diagnosed with Autism this past spring, I was open and honest with all of our friends and family about the diagnosis. We have been very open with everyone about the life we lead, and you can read this blog filled with content about our journey in raising him. It felt like… Read More Why I Don’t Care What Causes Autism

Adrenal Insufficiency, Blogging, Chronic Illness, Ehlers Danlo's Syndrome, Medically Fragile, Parenting, Parenting Advice, Special needs parenting

When You Are Raising a Child that May Not Live to be an Adult

One of the hardest things you will ever hear as a parent is that your child has a life threatening disease. When you receive the diagnosis, there is this haze that comes over you. I remember the day my son was diagnosed with panhypopituitarism like it was yesterday, and it was weird because I remember… Read More When You Are Raising a Child that May Not Live to be an Adult

ADHD, anti-vaccination, Anxiety, Apraxia, Autism, Blogging, Mental Health, Mom, Parenting, Parenting Advice

Why I Don’t Want to Cure My Son’s Autism

I have a topic that is weighing heavy on my heart. It is something I think about a lot because it profoundly affects my life daily as a parent of a child that has autism. My son is a loving, sweet, stubborn, smart, and unique boy that has a brain and body that sometimes don’t… Read More Why I Don’t Want to Cure My Son’s Autism

Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Personality, Special needs parenting

Why It’s Hard to Be Positive as a Special Needs Parent

Every child with special needs has strengths and weaknesses. As parents, we are bombarded with evaluations that itemize our children into small brackets of development. We see on these charts exactly where they match up compared to their peers. Our therapists help us understand where they are and how far they still have to go.… Read More Why It’s Hard to Be Positive as a Special Needs Parent

ADHD, Adrenal Insufficiency, Anxiety, Autism, Blogging, Ehlers Danlo's Syndrome, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Rare Disease, Sensory Processing Disorder

The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

I woke up this morning, and I felt tired. It wasn’t the tired where I couldn’t open my eyes or move my body, but this was an emotional exhaustion. My brain felt like it was zipping and zapping with no place to go and all the neurons were firing in the wrong places. ┬áThe exhaustion… Read More The Truth of Parenting a Child With Special Needs We Don’t Share with Friends

Anxiety, Autism, Blogging, Faith, Grief, Medically Fragile, Mental Health, Mom, Parenting, Parenting Advice, Post Traumatic Stress Disorder, Special needs parenting, Weight Loss

How Grieving Causes You to Make Poor Choices

Before my pregnancy, I was in the best shape of my life. I was working with a personal trainer three times a week, and we had worked together to develop a clean and healthy diet. My husband and I were both at healthy weights for our height, and we both had an incredible amount of… Read More How Grieving Causes You to Make Poor Choices