Blogging, Special needs parenting

A Letter to the Man that Called me a "Homemaker" instead of a Caregiver to a Medically Fragile child

Dear Sir, I know you don’t know better, but I truly was bristled by our conversation. I know it’s part of your job to understand the financial position of your clients, but it was really embarrassing for me. I never imagined myself in this position. It was not a part of my plan to be… Read More A Letter to the Man that Called me a "Homemaker" instead of a Caregiver to a Medically Fragile child

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Blogging, Medically Fragile, Special needs parenting

A year Later: How Making My Son with Special Needs my Priority Brought me Happiness and Fulfillment

It was a year ago that our lives were turned upside down. We had just found out about our son’s serious heart condition. The Cardiologist was so concerned about his heart that he believed surgery was within weeks. We waited with bated breath to find out what the surgeons wanted to do about his bad… Read More A year Later: How Making My Son with Special Needs my Priority Brought me Happiness and Fulfillment

Special needs parenting

4 Things Not to Say or Ask to a Parent of a Child with a Feeding Disorder

We embarked on our life with a feeding tube in 2016, but we had been dealing with my son’s feeding disorder since birth. There is really not much more isolating than having a child that cannot eat given that we live in a world that revolves around food. Every party, every holiday, every day 3-5… Read More 4 Things Not to Say or Ask to a Parent of a Child with a Feeding Disorder

Special needs parenting

When The Political Environment makes me Feel Weak, My Faith makes me Feel Strong

Today seems anything but hopeful. It is the day the 45th President will be sworn in to the United States. For many in the disabilities and medically fragile community, we are scared. We are scared that the services we have fought so hard for will be stripped from our children. We are worried that the… Read More When The Political Environment makes me Feel Weak, My Faith makes me Feel Strong

Special needs parenting

A Plea to Parents to keep their Sick Children Home: 3 ways your child's Illness could leave another child critically ill

Dear Parents, It is the dreaded time of season where snot flows from our children’s noses, cheeks are red and flush, coughs are at times dry and other times moist and productive, and fevers are spiking left and right. Flu and cold season happens every single year. Each year it is a struggle for all… Read More A Plea to Parents to keep their Sick Children Home: 3 ways your child's Illness could leave another child critically ill