Good morning! This week has been incredibly busy at work, so I’m just sneaking this in during a break. Yesterday a friend shared a blog with me written by a mother whose child is special needs. The mother did not like that parents of children with special needs call their children their Heroes. She felt… Read More Von is my Hero – And I mean it
Someone is skipping their nap!
This child is so ridiculously cute
Today I’m feeling a bit lighter on my feet. I believe that most of that is because I’m finally getting rid of this stuff that is inside of me. There were months that I sat around and I thought that no one cared. I thought I was reaching out for support, but I’m a very… Read More Feeling a Thousand Pounds Lighter
The topic I’m covering today I hope will help you better understand the complexity of Congenital PHP. There are several ways someone can acquire PHP through tumors both benign and malignant on or around the pituitary gland. However, for a child that is born with it, the lack of development of the pituitary gland can… Read More Midline Defect, Say what?
Well, today marks the day that Von came home from his crash, and the moment our lives really changed. Our new normal began, and our little boy was a whopping 8 lbs 8 ounces at 3.5 months old. He was just over 20 inches long, and he was basically starting his development as a newborn… Read More The Grieving Process
Von is busy playing and happy! Finally a Saturday where he is not sick!
When I can’t breathe and feel so emotional that I can’t think straight, I go to his room when he sleeps. I rub his back, and I listen to his gentle little moans. It is then I know this fight is worth it. Good night.
We are only human, and we can only handle so much, right? Right! So why is it that as a mother, full time employee, wife, daughter, sister, and friend I feel like I have to be perfect, I have to achieve, I have to say all the right things, I can’t be wrong? I just… Read More We are only Human